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Process evaluation in a randomised controlled trial of DREAMS-START (dementia related manual for sleep; strategies for relatives) for sleep disturbance in people with dementia and their carers

Introduction

DREAMS-START is a program designed to help people with dementia who have trouble sleeping. This study looked at how well the program worked and what factors influenced its success.

Methods

We used a mix of methods to gather information. We checked how well participants followed the program and interviewed family members and facilitators involved in the program. We also used a device to track movement in people with dementia over time.

Results

Most participants (82.8%) attended at least four out of six sessions. The program was delivered effectively, with a high fidelity score of 95.4%. We interviewed 43 family members and 9 facilitators. We found three main themes:

  • Knowledge and support help change behavior.
  • Learning to manage sleep issues improves sleep quality.
  • Establishing routines gives a sense of control.

Unfortunately, we couldn’t gather enough data from movement tracking for further analysis.

Conclusion

Despite busy schedules, family members attended the program, which helped them learn new skills and feel more in control. These findings will help improve future programs in healthcare settings.

Opportunities for Improvement

Based on the trial data, here are some opportunities:

  • Define Measurable Outcomes: Set clear goals for what success looks like in managing sleep disturbances.
  • Select AI Tools: Choose AI solutions that meet specific clinical needs for better management.
  • Implement Step by Step: Start with a pilot project, track results, and expand based on findings.

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